Being an inpatient with a condition like ME/Chronic Fatigue Syndrome can be really difficult. The constant sounds, noises and smells are a recipe for sensory overload when just there for an hour, let alone days, weeks or months. I asked our network what tips, tricks and hacks they used when in hospital to ease or minimise sensory input to make the stay more survivable.
Ultimately though, hospital is just a chaotic, noisy, busy, bright place and some of the process is about having tools ready for when you come home to unwind and relax your nervous system as quickly and effectively as possible. I save up what I would have spent on food etc., during my stay and I use it for a session of reflexology or massage after my stay and have a set of foot soaks, bath salts etc. to use when I get home as part of a concerted effort to reduce the overload back to normal.
As an aside, there is also a really useful document here about managing ME/CFS patients in an emergency care setting. I have added sections of it to my paramedics / A&E passport and a full copy in my A&E grab bag alongside my advance directive etc.
But for during a stay, here’s a list:
Light
- Sunglasses*
- Cap with a peak
- (Weighted) eye mask
Sound
- Loop ear plugs*
- Noice cancelling headphones*
- Sleep headphones
* were particularly recommended
Other
- Hospital passport/lanyard expressing need for consideration of light and sound*
- Closed curtains
- Weighted blanket/Your own blanket
- Crochet, fidget toy, stress ball, puzzles or other engrossing activity to focus attention
- Essential oils roller with favourite/relaxing scents
- Favourite squash and toast topping for consistent tastes
- Pillows to ensure you can relax comfortably and fully
