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In 2019 we conducted a piece of research to guide our work and also provide much-needed insight into chronic illness, its impacts and the lived experience of sufferers, family, friends, colleagues and professionals in the area.

Some of the results make for tough reading, but they show the scale of need within our community and among those we live with.

Below are the results of the survey, split into sections to make it easier to navigate. You can also download all of the results as a PDF by hitting the button below.



The layout of the findings on this page is focused on graphs and graphic representations, and are designed to visualise the data clearly .
If you would prefer to read the feedback and findings from a first-person perspective in short text-based slides, you can find those here.


Click on a tab below to see the relevant slides (it may take a second or two to load)

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