Everything you told us – the first person perspectives from our research report
In 2019 we asked you – chronic illness sufferers, family, friends, colleagues and healthcare professionals – to share your knowledge, experiences… everything you know about life with chronic illness, and gosh you told us more than we could have ever expected. Powerful, devastating and important, what you’ve told us is important not just in guiding our work, but in communicating to the world our truths.
Some of these slides make for hard, emotional reading, so they come with a content/trigger warning.
Below you’ll find most of (but not all!) of the insight you shared with us, split into sections to make it easier to navigate. You can also download all of the results as a PDF in a much less exciting (and more graph heavy) by hitting the button below.
Click on a tab below to see the relevant slides (it may take a second or two to load)
- How Illness Impacts Our Lives
- Our Symptoms & What Helps
- How Chronic Illness Impacts Our Mental Health
- How Chronic Illness Affects Our Relationships
- Thoughts on Mental Health Support
- Exercise, Movement & Chronic Illness
- Our Experiences & Challenges with Food
- How Friends & Family Support Us, And Would Like To Be Supported
- How Supported We Feel In Education, Training & Employment
- Challenges At Work
- About This Research
