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Category Archives: Thoughts, Ramblings & Life Hacks

Get involved and help Chronically Awesome

2 May, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0

So you’d like to …

Write for us

2 May, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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How can we help?

23 April, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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Survival tips for #shieldinglife

2 April, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0

If you’re anything like …

Happy birthday to my hip – reflections on a year with a new hip

28 March, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0

Earlier this week marked …

Thank you for taking us viral!

27 March, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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Posters for those who are self-isolating as a preventative measure

16 March, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks3 Comments0
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Our Research: Everything You Told Us

10 March, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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Weighted blankets, reviewed by a complex chronic illness sufferer

9 February, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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10 activities to do out and about with your favourite person

9 February, 2020 Chronically AwesomeAll Recipes & Articles, Thoughts, Ramblings & Life Hacks0
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Recent Posts

  • Hospital Inpatient / Long-Stay Bag Must-Haves from Amazon
  • Tips For Managing (ME/CFS) Sensory Overload in Hospital
  • Post Laparoscopic (Keyhole) Abdominal Surgery Toolkit
  • Tips for Attending a Festival with a Central Line / on Parenteral Nutrition
  • Advance Directive vs. Advance Statement (with Templates)

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chronically.awesome
Did you know that @aldiuk have partnered with @ter Did you know that @aldiuk have partnered with @terracycleuk to set up a postal recycling scheme for medication blister packs? You can send up to 60 strips a month. Just sign up and download the freepost labels each month to be able to send your blister packs for free. www.terracycle.com/en-GB/brigades/aldi-uk
I've put together a lit of my inpatient hospital b I've put together a lit of my inpatient hospital bag must haves. What's on your list? Link in bio.
You have come through again with the most amazing You have come through again with the most amazing advice for managing #SensoryOverload while an inpatient. As promised I've written up your recommendations with some *bonus extra bits* into a post available over on the blog now! Thank you everyone, you're all awesome!
Thank you to everyone who contributed recommendati Thank you to everyone who contributed recommendations for post-gallbladder-removal care package. As promised, I’ve compiled them all into one post so everyone can benefit! If you’re reading this and about to have your #gallbladder removed, a #hysterectomy, an #exploratory #laparotomy, #endometriosis or #adenomyosis #excision #surgery or another abdominal surgery, you have our best wishes and gentle hugs. Good luck! Link in bio
Thinking of going to a festival this year but not Thinking of going to a festival this year but not sure how to navigate it with a #CentralLine for things like #ParenteralNutrition? No worries! I camped at @latitudefest last year and documented my recommendations from it so you can learn from what I found worked and didn't. Link in bio. Enjoy! 🤟🏻
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Find us on Facebook

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Find us on Instagram

chronically.awesome
Did you know that @aldiuk have partnered with @ter Did you know that @aldiuk have partnered with @terracycleuk to set up a postal recycling scheme for medication blister packs? You can send up to 60 strips a month. Just sign up and download the freepost labels each month to be able to send your blister packs for free. www.terracycle.com/en-GB/brigades/aldi-uk
I've put together a lit of my inpatient hospital b I've put together a lit of my inpatient hospital bag must haves. What's on your list? Link in bio.
You have come through again with the most amazing You have come through again with the most amazing advice for managing #SensoryOverload while an inpatient. As promised I've written up your recommendations with some *bonus extra bits* into a post available over on the blog now! Thank you everyone, you're all awesome!
Thank you to everyone who contributed recommendati Thank you to everyone who contributed recommendations for post-gallbladder-removal care package. As promised, I’ve compiled them all into one post so everyone can benefit! If you’re reading this and about to have your #gallbladder removed, a #hysterectomy, an #exploratory #laparotomy, #endometriosis or #adenomyosis #excision #surgery or another abdominal surgery, you have our best wishes and gentle hugs. Good luck! Link in bio
Thinking of going to a festival this year but not Thinking of going to a festival this year but not sure how to navigate it with a #CentralLine for things like #ParenteralNutrition? No worries! I camped at @latitudefest last year and documented my recommendations from it so you can learn from what I found worked and didn't. Link in bio. Enjoy! 🤟🏻
Future planning healthcare can feel difficult, but Future planning healthcare can feel difficult, but it can also make a huge difference further down the line. I've used the directive and statement I've put together for myself to create templates you can fill in to make the process as pain free as possible. Link in bio.
Anyone with hypermobile Ehlers Danlos Syndrome (#h Anyone with hypermobile Ehlers Danlos Syndrome (#hEDS) knows that getting comfortable in bed can be a nightmare – pun very much intended! If you’re like me and have instability in the neck, shoulders and hips, sleeping positions become very limited. That in itself then becomes an issue because bony areas become sore from sustained pressure against the mattress. #Painsomnia, sleep apnoea and restless leg syndrome join the party and you’re in for a long night. Of course medical professionals can help with pain medication, treatments for things like restless leg syndrome (assuming magnesium supplements or rubs don’t work) and sleep apnoea can be managed with a mandibular device or a CPAP machine. But what of getting comfy? I’ve spent the last few years honing in on a set of tools for sleeping, all purchased from @amazonuk. Available on the blog now.
It's with a heavy heart that the time has come to It's with a heavy heart that the time has come to say goodbye. As some of you know, my health over the last 18 months has taken a sharp decline, and I've spent a lot of time in hospital, ending up in intestinal failure and on TPN and IV fluids and under investigation for ME on top of the already long list of diagnoses. It just hasn't been possible to dedicate the time and energy required to keep Chronically Awesome going - it was a huge undertaking even when I was doing well. Whatsmore, it doesn't look like I'll be in a position to make Chronically Awesome work looking ahead to the future. So the difficult decision was taken by myself and the Board of Trustees to close Chronically Awesome down. Don't worry though, all the awesome content we worked so hard to create will still be accessible. We'll keep our website and social media up for anyone to browse. PLUS all 130+ exercise videos are now available FREE on YouTube, link in our bio. Sending gentle hugs and loads of love, Ellie
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